Wetenschappelijk Onderzoek

Omgaan met uitdagingen in onderzoek naar palliatieve zorg
Volgens Farquhar et al., er zijn zes belangrijke uitdagingen in onderzoek naar palliatieve zorg die kunnen worden beantwoord door onderzoek naar gemengde methoden. Tabel 4 beschrijft hoe deze studie alle zes belangrijke uitdagingen probeert aan te pakken. Hoewel er aandacht was voor deze belangrijke uitdagingen bij het opzetten van dit onderzoek, wordt verwacht dat de werving van huisartsen en patiënten nog steeds tijdrovend zal zijn.

Uitdagingen voor onderzoek naar palliatieve zorg en oplossingen die hier worden gegeven

Deze aanpak past in het paradigma van het Learning Health Care System
Deze studie gebruikt routinematige zorgconsumptiegegevens om het mogelijke effect van deze interventie te beschrijven, gericht op verbetering van de palliatieve zorgverlening in de gemeenschap. Deze benadering is vergelijkbaar met de concepten van het Transform-project [13], waarin routinegegevens in de eerstelijnsgezondheidszorg Electronic Health Records (EHR) worden gebruikt om EHR-gegevens van patiënten te vinden voor onderzoeksdoeleinden [12], en past in het ideaal van de leeromgeving. Gezondheidszorg systeem. Artsen en patiënten hoeven geen extra inspanningen te leveren om bruikbare gegevens te leveren, terwijl de onderzoekers en de regelgevende instanties de privacy van deze gegevens garanderen. Uiteindelijk zullen grootschalige epidemiologische en gezondheidseconomische studies op een haalbare manier mogelijk worden gemaakt [12].

discussie en conclusie
Dit artikel legt de kwantitatieve methoden uit die worden gebruikt in de evaluatiestudie van de CPPPC (de eerste evaluatiestudie van een primaire palliatieve zorginterventie in België) en toont een innovatieve manier van gegevensverzameling en koppeling op een veilige manier, waardoor het haalbaarder wordt voor onderzoekers om grote datasets uit verschillende bronnen te analyseren. Een samenvatting van dit artikel is te lezen in tabel 5. Gehoopt wordt, hoewel nog niet bewezen, dat de gebruikte IT-oplossingen de respondentlast gedeeltelijk verminderen, een bekend probleem in onderzoek naar palliatieve zorg.



Care Pathway for Primary Palliative CareIMA:

Intermutualistic AgencyHI fund(s):

Health insurance fund(s)NIHDI:

National Institute for Health and Disability InsuranceNN:

National Registry NumberPCN:

Palliative care networkPOS:

Palliative outcome scalePPSv2:

Palliative performance scale (version 2)SPICT:

Supportive and palliative care indicator toolTTP:

Trusted third party


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